Empowered to Participate in Your Care
Patient Power – Patient Power is an organization dedicated to providing resources and information to help anyone who is experiencing cancer or chronic illness gain the confidence and knowledge to become an empowered advocate to make medical decisions and live well with cancer.
Cancer Support Community – An international non-profit dedicated to providing support, education and hope to people affected by cancer. They provide emotional support groups, education, and a program called Open to Options™ which provides counselors who can help cancer patients organize and prioritize their questions, concerns, goals and values before oncology visits. This program is available in English and Spanish, and helps patients make informed decisions about their care.
Talk About Health – TalkAboutHealth is an expert question & answer web site that provides access to the knowledge and expertise of the world’s leading medical providers. They provide online workshops whereby patients can ask medical professionals questions, and have a full video library of information that provides education to patients so they can be a participating healthcare consumer. They provide interactive and personalized learning programs that can guide patients through treatments step by step, helping patients prepare for what’s next. Their goal is to encourage a higher level of doctor and patient interaction, and to reduce patient distress.
Cancer.Net – Cancer.Net provides oncologist-approved information from the American Society of Clinical Oncology (ASCO). They have collaborated with the Conquer Cancer Foundation, and bring expertise and resources to people who are living with cancer, their caregivers and families to help make informed and educated decisions about health care. The website offers information on all types of cancer, research, managing the emotional effects of cancer, and guidance throughout the cancer survivorship journey.
Supporting One Another & Locating Resources
Colorado Ovarian Cancer Resource Guide – A Colorado directory of ovarian cancer resources to be used as guidance for those who are experiencing ovarian cancer. This is published by the Colorado Ovarian Cancer Alliance.
LIVESTRONG FOUNDATION – Information, resources, guidance and one-on-one support for anyone going through any stage of a cancer diagnosis.
Finding Trusted Information on the Web
Recommended Trusted Cancer Web Sites by the Medical Library Association’s Cancer Librarians – This is a wide-ranging document of trusted, quality cancer resources and web sites that has been compiled and by the Medical Library Association’s Cancer Librarians. The document includes reliable resources for children & adolescents, clinical trials, patient information resources, current cancer news, research, professional cancer-related organizations, statistics, conventional treatment options, alternative, complementary medicine, cancer drug development, and oncology practice guidelines. It is targeted toward cancer care professionals and patients, is updated regularly and can be printed in PDF.
UpToDate® for Patients – Learn about medical treatments and treatment options from the same source your physicians may be using. There is a free “Beyond the Basics” version and if you are interested in more detailed information you can subscribe for unlimited access to trusted, current and evidence-based resource.
Medline Plus – This is a National Institute’s of Health’s Web site that provides Trusted Health Information on various health topics, drugs, supplements, great tutorials, easy to understand educational videos and links to current research.
Learning about Alternative, Complementary and Integrative Medicine
MSKCC Search About Herbs – Memorial Sloan Kettering has a comprehensive list of herbs and their potential interactions with cancer treatments.
OCCAM Office of Cancer Complementary and Alternative Medicine – OCCAM has developed a broad range of tools to help patients learn about Complementary, Alternative and Integrative Medicine. These include a workbook to assist you in talking to your health care providers about their use during and after cancer care.